Genre: contemporary literature
Setting: Providence, RI
I read it as a(n): MMP
Source: my own collection
Length: 500 pp
Published by: Pocket Books (2004)
Her Grace’s rating: 4 out of 5 stars
**Yeah, I’m gonna go ahead and smack a great big SPOILER ALERT on this whole review. Read at your own risk, you’ve been warned**
Thirteen-year-old Anna Fitzgerald loves her sister, Kate, who has a rare form of leukemia. But that doesn’t mean she is willing to donate a kidney to her on top of everything else she’s already had done to her. Anna was born via in vitro specifically so that she could be a donor for Kate. To be fair, her parents only wanted to use her cord blood to help Kate and everyone thought that would be the end of it. Turns out, it was only the beginning of years of blood, bone marrow, and other body part donations to Kate. Now Anna is suing her parents for medical emancipation, for her right to control her own body, even if it means Kate dies as a result.
Somehow I have missed the Jodi Picoult fandom; this is the first book of hers I’ve ever read. I can see why she is so popular! I sat my ass down and read this entire 500 page book in one day. I found her writing to be engaging and the story compelling. I look forward to reading more of her books in the future.
The appeal of this one was how easily I could see and sympathize with all sides of the situation. There is so much to talk about regarding medical and scientific ethics. I don’t think anyone know what they would do in certain circumstances until they found themselves in it. I’m not sure I would have a whole other baby on the off chance their cord blood was curative. But then I also don’t have a child with a rare, treatment-resistant form of leukemia, either. Maybe I would have had baby after baby until one was a match, or gone the route the Fitzgeralds took and basically had a designer baby who would be a perfect match. I just don’t know. And neither do you, unless you’ve already lived it.
I am not sure what I would feel about discovering that the cord blood only worked for a while and now the leukemia is no longer in remission, thus needing to turn to the younger child again for more blood and platelets. Or for that to be the constant situation. Or to have both children in the hospital because one has leukemia and the other is recovering from whatever else was done to her to donate blood, marrow, and other body fluids to the other.
I really don’t know what I would do if my child was guaranteed to die without a new kidney, but might not make it off the table even if she did get her sister’s organ. I don’t know how to weigh the almost-certain death of one child against the life-long risks associated with losing one kidney for the other child, not to mention that the kidney donation itself is a major surgery with many weeks of recovery time required.
And poor Jesse! Who is Jesse? He’s Anna and Kate’s brother. Yeah, his parents and usually his sisters forget about him all the time, too. I’d act out if I were in his shoes. I don’t need to have lived the same experiences to know at least that much.
The parents of these kids were given the short straw for sure. But so did their children. This isn’t Never Let Me Go or The Unit. We don’t breed or keep people for the sole purpose of giving other people their organs. I know they only thought they would need Anna’s cord blood. But it still feels morally wrong to me to have a baby even for that one-time donation. I think if I were that kid, I would probably feel very used and mostly unwanted, that I was only here because of that and otherwise, they didn’t want me in the first place.
I liked the lawyer, Campbell Alexander, for taking on Anna’s case for free, partly because of his own lack of control over his body and partly because Anna refused to take no for an answer. He did his job and won her case and then had to use his new Power of Attorney over Anna in the most heartbreaking way. This ending, BTW, was entirely different in the film version of this book, which I watched after I finished reading it. The movie ending sucked. The book’s end was so much more poignant. I can’t fathom why on earth the screenwriters would change it.
In the end, I loved this book for its multitude of ways it got me thinking. The fact that it was written in such an engaging and easy manner, with characters who I cared about, made it that much better. I am looking forward to reading more books by Picoult. That’s one good thing about coming to the party so very late – now I have a plethora of her books to choose from!